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[Disabled child, care and ethical aspects]

Journal title
La Revue du praticien
Publication year
Chabrol, B.

Disabled child, care and ethical aspects. The child's doctor occupies a privileged place in the life of a child with a disability. At all times, he must be an adviser, favouring a global approach and support to ensure optimal autonomy. Discovery of a neurodevelopmental disorder justifies a systematic search for the various causes known to date. Identification and knowledge of a precise diagnosis is an essential element in constructing the life plan for a disabled child. The announcement of the diagnosis is an integral part of the care system, it only makes sense when combined with tailor-made and step by step support. This requires that the doctor has a good knowledge of the main childcare structures, guidance agencies, and available financial aid. Multidisciplinary consultations enable a global approach to support a child with a disability. More children with disabilities become adults as medical care progresses. Transition from "children" to "adult" consultations represents a major challenge. However, some cases could be life-threatening. The decision on whether to continue the various therapies have to be considered and discussed with the child and his family, with reference to the notion of "unreasonable obstinacy". Drafting an individual certificate of "remarkable patient" will best help the implementation of end-of-life support measures.

Research abstracts