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Experiences of Parents and General Practitioners with End-of-Life Care in Adolescents and Young Adults with Cancer

Journal title
Journal of adolescent and young adult oncology
Publication year
Kaal, S. E.; Kuijken, N. M.; Verhagen, C. A.; Jansen, R.; Servaes, P.; van der Graaf, W. T.

This study aims to analyze the experiences of Dutch bereaved parents and general practitioners (GPs) with palliative care of AYAs (18-35 years) in the terminal stage. Fifteen parents and nine GPs involved with nine deceased AYAs filled out questionnaires and were interviewed by telephone, respectively. In general, the parents were satisfied with the emotional care they themselves received and the medical care that their child received. The GPs were very satisfied with the cooperation with the palliative team. Gaps are present in the areas of symptom control, communication between hospital professionals and parents, aftercare, and transition between hospital and GP.

Research abstracts