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Grief and the experiences of nurses providing palliative care to children and young people at home

Journal title
Nursing children and young people
Publication year
Reid, F.

AIMS: To elicit the views of children’s nurses with regard to the personal, contextual and interprofessional challenges faced when delivering palliative and end of life care to children and young people in the community. METHODS: Semi-structured interviews were conducted with seven nurses who provided palliative care to one or more child or young person in the home. Data generated were analysed thematically to define topics. FINDINGS: Four themes emerged: service delivery, nurse-family relationships, nurses’ grief, funeral rites and bereavement support. CONCLUSIONS: Nurses experienced considerable internal and external pressures. Some are inevitable but others, such as organisation of care provision to families and nurses’ personal coping, could be improved by adequately resourced workforces, integrated service structures and guidance on reflective practice. Further research is needed.

Research abstracts