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Right Brain: Withholding treatment from a child with an epileptic encephalomyopathy

Journal title
Neurology
Publication year
2018
Author(s)
Rothstein, A.; Lewis, A.
Pages
857-859
Volume
90
Number
18

The case of Charlie Gard, an infant who was hospitalized in England due to a mitochondrial DNA depletion syndrome that led to an epileptic encephalomyopathy, was highly publicized. Though Charlie’s parents lobbied for him to receive experimental nucleoside replacement therapy as a desperate effort to save him, this request was denied, and after a lengthy legal battle, he died in late July 2017. We discuss the ethical considerations and consequences of this case.

Research abstracts