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Surviving with trisomy 13: Provider and parent perspectives and the role of the pediatric palliative care program

Journal title
American journal of medical genetics. Part A
Publication year
2017
Author(s)
Chung, D.; Haynes, K.; Haynes, R.
Pages
813-815
Volume
173
Number
3

Trisomy 13 typically denotes an overall poor prognosis in the setting of multisystem anomalies. Through a provider and parent perspective, this case illustrates the benefit of hope, communication, and teamwork through the integration of a palliative care team in the care of a medically complex child with trisomy 13, resulting in enhance survival and perceived quality of life for patient and family. (c) 2016 Wiley Periodicals, Inc.

Research abstracts