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The role of nurses in the management of children with epidermolysis bullosa

Journal title
Rev. Fr. Allergol. Immunol. Clin.
Publication year
2001
Author(s)
Lustre, A.; Leve-Corset, I.; Leeuwin, G.; Launay, C.; Blondy, M. F.; Michaud, M. T.; Maze, C.; Bodak, N.; Bodemer, C.
Pages
659-663
Volume
41
Number
7

The dystrophic form of congenital epidermolysis bullosa causes skin lesions resembling those of patients with severe bums. The loosening of the skin is permanent and occurs repeatedly, in a series of flare-ups. The mucous membranes are particularly severely affected. Skin care requires numerous personnel and pain management is of prime importance. The management of this condition is therefore highly specialised. The prognosis is very poor with dystrophic epidermolysis bullosa typically resulting in the death of the patient. (C) 2001 Editions scientifiques et medicales Elsevier SAS.

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