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Research

We are committed to fostering a culture in which academic research flourishes. New abstracts and the Synopsis publication are added online twice a year. We also lead a joint Research Group with the APPM.

Search our online database by title, author(s), publication year or key word(s).

Synopsis is issued by Together for Short Lives twice a year

It contains hundreds of articles drawn from as many medical, nursing and social care journal as possible. Synopsis captures the key research relevant to children and young people’s palliative care.

‘A short time but a lovely little short time’: Bereaved parents’ experiences of having a child with spinal muscular atrophy type 1

Journal title
Journal of paediatrics and child health
Publication year
2016
Author(s)
Higgs, E. J.; McClaren, B. J.; Sahhar, M. A.; Ryan, M. M.; Forbes, R.
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‘Best interests’ in paediatric intensive care: an empirical ethics study

Journal title
Archives of disease in childhood
Publication year
2017
Author(s)
Birchley, G.; Gooberman-Hill, R.; Deans, Z.; Fraser, J.; Huxtable, R.
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‘Congenital peripheral neuropathy presenting as apnoea and respiratory insufficiency: spinal muscular atrophy with respiratory distress type 1 (SMARD1)’

Publication year
2004
Author(s)
Appleton, R. E.; Hubner, C.; Grohmann, K.; Varon, R.
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‘Effectiveness of sedation using nitrous oxide compared with enteral midazolam for botulinum toxin A injections in children’

Publication year
2009
Author(s)
Gubbay, A.; Langdon, K.
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‘Fighting for care’: parents’ perspectives of children’s palliative care in South Tyrol, Italy

Journal title
International journal of palliative nursing
Publication year
2015
Author(s)
Darbyshire, P.; Mischo-Kelling, M.; Lochner, L.; Messerschmidt-Grandi, C.
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‘Having cancer was awful but also something good came out’: Post-traumatic growth among adult survivors of pediatric and adolescent cancer

Journal title
European journal of oncology nursing : the official journal of European Oncology Nursing Society
Publication year
2017
Author(s)
Zamora, E. R.; Yi, J.; Akter, J.; Kim, J.; Warner, E. L.; Kirchhoff, A. C.
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‘I can’t tell my child they are dying’. Helping parents have conversations with their child

Journal title
Archives of disease in childhood. Education and practice edition
Publication year
2017
Author(s)
Aldridge, J.; Shimmon, K.; Miller, M.; Fraser, L. K.; Wright, B.
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‘I don’t know how we coped before’: a study of respite care for children in the home and hospice

Publication year
2008
Author(s)
Eaton, N.
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