Together for Short Lives
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Research

We are committed to fostering a culture in which academic research flourishes. New abstracts and the Synopsis publication are added online twice a year. We also lead a joint Research Group with the APPM.

Search our online database by title, author(s), publication year or key word(s).

‘I can’t tell my child they are dying’. Helping parents have conversations with their child

Journal title
Archives of disease in childhood. Education and practice edition
Publication year
2017
Author(s)
Aldridge, J.; Shimmon, K.; Miller, M.; Fraser, L. K.; Wright, B.
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‘I don’t know how we coped before’: a study of respite care for children in the home and hospice

Publication year
2008
Author(s)
Eaton, N.
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‘I had this horrible pain’: the sources and causes of pain experiences in 4- to 11-year-old hospitalized children

Publication year
2004
Author(s)
Kortesluoma, R. L.; Nikkonen, M.
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‘I have to live with the decisions I make’: laying a foundation for decision making for children with life-limiting conditions and life-threatening illnesses

Journal title
Archives of disease in childhood
Publication year
2017
Author(s)
Bluebond-Langner, M.; Hargrave, D.; Henderson, E. M.; Langner, R.
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‘In palliative care we help children make memories’

Journal title
Nursing standard (Royal College of Nursing (Great Britain) : 1987)
Publication year
2016
Author(s)
Cole, E.
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‘It is life threatening but I don’t mind’. A qualitative study using photo elicitation interviews to explore adolescents’ experiences of renal replacement therapies

Journal title
Child: care, health and development
Publication year
2013
Author(s)
Wells, F.; Ritchie, D.; McPherson, A. C.
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‘It takes three to tango’: a framework for understanding patient partnership in paediatric clinics

Publication year
2004
Author(s)
Gabe, J.; Olumide, G.; Bury, M.
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‘It’s a hard conversation to have’. Healthcare professionals’ views concerning advance care discussions with young people affected by life-limiting neuromuscular diseases: an interview study

Journal title
BMJ supportive & palliative care
Publication year
2017
Author(s)
Hiscock, A.; Barclay, S.
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