Together for Short Lives
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Research

We are committed to fostering a culture in which academic research flourishes. New abstracts and the Synopsis publication are added online twice a year. We also lead a joint Research Group with the APPM.

Search our online database by title, author(s), publication year or key word(s).

‘Jumping through hoops’: parents’ experiences with seeking respite care for children with special needs

Publication year
2009
Author(s)
Doig, J. L.; McLennan, J. D.; Urichuk, L.
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‘Just gripping my heart and squeezing’: Naming and explaining the emotional experience of receiving bad news in the paediatric oncology setting

Journal title
Patient education and counseling
Publication year
2017
Author(s)
Nelson, M.; Kelly, D.; McAndrew, R.; Smith, P.
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‘One wants to know what a chromosome is’: the internet as a coping resource when adjusting to life parenting a child with a rare genetic disorder

Journal title
Sociology of health & illness
Publication year
2011
Author(s)
Gundersen, T.
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‘Place bonding’ in children’s hospice care: a qualitative study

Journal title
BMJ supportive & palliative care
Publication year
2018
Author(s)
Dunbar, H.; Carter, B.; Brown, J.
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‘Something normal in a very, very abnormal environment’ – Nursing work to honour the life of dying infants and children in neonatal and paediatric intensive care in Australia

Journal title
Intensive & critical care nursing : the official journal of the British Association of Critical Care Nurses
Publication year
2016
Author(s)
Bloomer, M. J.; Endacott, R.; Copnell, B.; O'Connor, M.
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‘Something normal in a very, very abnormal environment’–Nursing work to honour the life of dying infants and children in neonatal and paediatric intensive care in Australia

Journal title
Intensive & critical care nursing
Publication year
2016
Author(s)
Bloomer, M. J.; Endacott, R.; Copnell, B.; O'Connor, M.
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‘The end of treatment is not the end’: parents’ experiences of their child’s transition from treatment for childhood cancer

Journal title
Psycho-oncology
Publication year
2012
Author(s)
McKenzie, S. E.; Curle, C.
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‘The most disgusting ever’: children’s pain descriptions and views of the purpose of pain

Publication year
2006
Author(s)
Kortesluoma, R. L.; Nikkonen, M.
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