Talking with your child about their life-limiting condition
Coming to terms with the news that your child has a life-limiting or life-threatening medical...
Resources
Browse our resource library for advice and best practice on a range of children’s palliative care issues. Resources are available as pdf downloads, and some can be ordered as hard-copies (free to families and our members). Download a catalogue of all our resources.
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The Mental Capacity Act and Liberty Protection Safeguards
As your child approaches adulthood, you will need to think about the shift towards their...
The Verification of Expected Death in Childhood Guidance
The verification of expected death in childhood: Guidance for children’s palliative care services gives detailed...
Together For Families
Together for Families is a newsletter for families and carers, running three times a year....
Transition to adult services: A guide for parents
Caring for a child with a life-limiting or life-threatening condition who is entering their teens...
Understanding Siblings’ Needs
This resource is for parents and carers of a child who has been diagnosed with...
What is ‘research’ and what is its value? – CoPPAR Webinar 22.03.22
In this CoPPAR webinar, which took place in March 2022, we unpick what constitutes ‘research’,...
Bereavement support standards for children’s hospitals
The National Children's Hospitals Bereavement Network: Bereavement support standards for children’s hospitals within the UK...