Making Every Young Adult Count
New research shows that the number of young adults with life-limiting conditions has increased significantly...
Resources
Browse our resource library for advice and best practice on a range of children’s palliative care issues. Resources are available as pdf downloads, and some can be ordered as hard-copies (free to families and our members). Download a catalogue of all our resources.
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Pursuing a career in clinical research
There is growing evidence that the engagement of clinicians and organisations in research can improve...
Setting up your children’s palliative care service as a research site
Children’s hospices and NHS organisations are crucial to the development and delivery of research in...
The role of young people, parents and families in research
Young people, parents, and families have crucial role to play in supporting research into improving...
The Spectrum of Children’s Palliative Care Needs – Introduction
An introductory leaflet and user guidelines for this prognostic based framework to identify children and...
The Spectrum of Children’s Palliative Care Needs – Spectrum framework
A prognosis based framework for children and young people who have palliative care needs
Use of liquidised ‘table food’ diets via gastrostomy Q&A
This resource, produced by a small working party with interdisciplinary representation from British Dietetic Association,...
West Midlands Toolkit
The Toolkit exists to support families in their unique journeys, by equipping staff with resources...