News and Comment

My son William is now ten. He is a charming, happy little boy who lights up the room with his laugh. He was also born with Edwards Syndrome, which means he has required 24/7 medical care for his whole life....

When our son Ben was born and diagnosed with Spinal Muscular Atrophy, a neurological condition that causes weakness to the muscles, our lives were turned upside down. Ben’s condition means he has complicated health needs which require personal one to...

Together for Short Lives has expressed deep concern at the findings of the Care Quality Commission’s review into end of life care in England - and has highlighted how shortfalls in care for dying adults are reflected in end of...

We are now in the 7th year of Dying Matters, with the coalition established in 2009 to promote public awareness of dying, death and bereavement. As each year passes I hope that there will be a sudden transformation and we will all...

Together for Short Lives has published a new guide to help families of children and young people with life-limiting conditions join-up their education, health and social care. Free to download and use, the interactive online guide  helps families to understand their rights...

Today I am going to set out four points and with them four challenges – by addressing each I think we can help to improve the quality of care at the end of life. But before we turn to them...