When Children’s Hospice UK and ACT merged to become Together for Short Lives five years ago, one of the first things we did was to think about our culture and our values – what kind of organisation did we need...

There is not a day in my life that goes by where I don't wish I could clone myself, while this would be a somewhat scary prospect for my children it might make my life slightly easier. I describe myself...

Discovering I was pregnant with Callum was a wonderful, if unexpected surprise; a baby brother for my son Connor! Everything progressed well until Callum suffered oxygen deprivation at birth, resulting in severe brain damage. At six days old, I was...

MPs from across the parties have today pressed the government to improve the care and support on offer to children and young people with life-shortening conditions. The debate was secured by Conservative MP and former children’s hospice fundraising manager Stuart...

My son William is now ten. He is a charming, happy little boy who lights up the room with his laugh. He was also born with Edwards Syndrome, which means he has required 24/7 medical care for his whole life....

When our son Ben was born and diagnosed with Spinal Muscular Atrophy, a neurological condition that causes weakness to the muscles, our lives were turned upside down. Ben’s condition means he has complicated health needs which require personal one to...