Together for Short Lives
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News and Comment

Read the latest news about Together for Short Lives and children’s palliative care. For press enquiries see our Media Centre. Keep up-to-date with the latest news by signing up to our news bulletin and by following us on Twitter 

"policy & public affairs" tag

Why short breaks are our lifeline

Date Posted
14 May, 2016
Doug Morris

When our son Ben was born and diagnosed with Spinal Muscular Atrophy, a neurological condition that causes weakness to the muscles, our lives were turned upside down. Ben’s condition means he has complicated health needs which require personal one to...

Talking about childhood death

Date Posted
4 May, 2016
Katrina McNamara

We are now in the 7th year of Dying Matters, with the coalition established in 2009 to promote public awareness of dying, death and bereavement. As each year passes I hope that there will be a sudden transformation and we will all...

Joint commissioning for children’s palliative care

Date Posted
16 April, 2016

Our resource is designed to support clinical commissioning groups (CCGs) and local authorities in England to effectively commission palliative care for children and young people aged 0–25. Produced as part of our Department for Education-funded special educational needs and disability (SEND)...


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