Together for Short Lives
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News and Comment

Read the latest news about Together for Short Lives and children’s palliative care. For press enquiries see our Media Centre. Keep up-to-date with the latest news by signing up to our news bulletin and by following us on Twitter 

"policy & public affairs" tag

Welcome funding boost for children’s hospices

Date Posted
11 April, 2016

Together for Short Lives has welcomed the Government’s decision to award millions of pounds to children’s hospices to improve the physical environments in which they provide care. The Government has made £60million available to all adult’s and children’s hospices in...

Dusting ourselves down and living

Date Posted
1 March, 2016
Author
Amanda Harrison

Last night I was honoured to speak at an event at 10 Downing Street about the experience of raising my son James. James has Infantile Batten Disease – a neurological degenerative condition. There is no treatment, and no cure. James...

A crisis in palliative care for children

Date Posted
13 January, 2016
Author
Barbara Gelb OBE

These children have the weakest voice, their voice is not heard, they do not influence elections As we wake up to a new year we also need to wake up to the potential of a crisis in palliative care for...

Lords must act on baby mobility benefit

Date Posted
8 December, 2015
Author
Barbara Gelb OBE

Parents of seriously ill babies make enormous sacrifices – but being able to leave the house as a family shouldn’t be one of them. Tomorrow, members of the House of Lords (or ‘peers’) have an opportunity to give an amazing...

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