News and Comment

Our resource is designed to support clinical commissioning groups (CCGs) and local authorities in England to effectively commission palliative care for children and young people aged 0–25. Produced as part of our Department for Education-funded special educational needs and disability (SEND)...

Together for Short Lives has welcomed the Government’s decision to award millions of pounds to children’s hospices to improve the physical environments in which they provide care. The Government has made £60million available to all adult’s and children’s hospices in...

Samantha Cameron last night (1 March) hosted a reception on our behalf at No. 10 Downing Street. The event helped to raise awareness of the needs of the UK’s 49,000 children and young people living with a life-shortening condition. Mum,...

Last night I was honoured to speak at an event at 10 Downing Street about the experience of raising my son James. James has Infantile Batten Disease – a neurological degenerative condition. There is no treatment, and no cure. James...

These children have the weakest voice, their voice is not heard, they do not influence elections As we wake up to a new year we also need to wake up to the potential of a crisis in palliative care for...

Parents of seriously ill babies make enormous sacrifices – but being able to leave the house as a family shouldn’t be one of them. Tomorrow, members of the House of Lords (or ‘peers’) have an opportunity to give an amazing...