We are now in the 7th year of Dying Matters, with the coalition established in 2009 to promote public awareness of dying, death and bereavement. As each year passes I hope that there will be a sudden transformation and we will all...
Today I am going to set out four points and with them four challenges – by addressing each I think we can help to improve the quality of care at the end of life. But before we turn to them...
Our resource is designed to support clinical commissioning groups (CCGs) and local authorities in England to effectively commission palliative care for children and young people aged 0–25. Produced as part of our Department for Education-funded special educational needs and disability (SEND)...
Together for Short Lives has welcomed the Government’s decision to award millions of pounds to children’s hospices to improve the physical environments in which they provide care. The Government has made £60million available to all adult’s and children’s hospices in...
Samantha Cameron last night (1 March) hosted a reception on our behalf at No. 10 Downing Street. The event helped to raise awareness of the needs of the UK’s 49,000 children and young people living with a life-shortening condition. Mum,...
Last night I was honoured to speak at an event at 10 Downing Street about the experience of raising my son James. James has Infantile Batten Disease – a neurological degenerative condition. There is no treatment, and no cure. James...
