As we digest the outcome of the 2017 General Election we should also reflect on commitments on palliative and hospice care made by some of the parties in their manifestos. This cross-party recognition is good news for the 49,000 children...
Together for Short Lives has welcomed the opportunity to help shape the new quality standard for children’s palliative care, which represents another positive step forward for care and support for children with life-limiting conditions. In our response to the National Institute for...
Perhaps an odd title for a blog as we enter a period of unprecedented political and social change both here and abroad. But events over the past 12 months, and indeed those ahead, have reinforced my belief that what unites...
A number of peers have called for the government to transform the way in which children’s palliative care is planned, funded and provided in England. On Tuesday (14 March), several peers called on the government to make sure that NHS...
My name is Leah Booth and I am a Young Avenger for Together for Short Lives. I have Spinal Muscular Atrophy Type 2 which mean I need 24/7 care and support. I wanted to write to you regarding the transitions,...
In October 2012 a Neurologist at Great Ormond Street Hospital gave my husband and I the worst imaginable news. Our youngest child Frank, aged 4, was diagnosed with Late Infantile Batten Disease, a rare, incurable, neurodegenerative condition. Frank had been healthy...
