These children have the weakest voice, their voice is not heard, they do not influence elections As we wake up to a new year we also need to wake up to the potential of a crisis in palliative care for...

Parents of seriously ill babies make enormous sacrifices – but being able to leave the house as a family shouldn’t be one of them. Tomorrow, members of the House of Lords (or ‘peers’) have an opportunity to give an amazing...

Hosted by former Martin House Children’s Hospice fundraising manager Stuart Andrew (Conservative MP for Pudsey), our ‘Care Around the Clock’ reception was an important opportunity for our sector to ask parliamentarians to press ministers and local health and social care...

Today, I am hosting a parliamentary reception on behalf of Together for Short Lives – the UK charity for children with life-limiting and life-threatening conditions. The event is part of the charity’s campaign to secure an around the clock service...

My name is Lucy Watts and I am 22 years old. I have a life-limiting/life-threatening form of a condition called Ehlers-Danlos Syndrome. I spend a lot of time in hospital, but I want to be supported in the community, in...

We are fortunate to live in a country where end of life care is the best in the world. Like many across the children’s palliative care sector, I’ve spent time reflecting on the Economist Intelligence Unit’s (EIU) Quality of Death Index and...