Numbers of Children Affected by Life-Limiting or -Threatening conditions
This summary fact sheet has been developed by Together for Short Lives with Dr Lorna...
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Resources
Browse our resource library for advice and best practice on a range of children’s palliative care issues. Resources are available as pdf downloads, and some can be ordered as hard-copies (free to families and our members). Download a catalogue of all our resources.
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Parent Support Groups
At Together for Short Lives, we know families often appreciate support from professionals and other...
Perinatal Pathway for Babies with Palliative Care Needs
The Perinatal Pathway for Babies with Palliative Care Needs is the latest in our suite...
Personal budgets: a children’s palliative care provider’s perspective
This resource considers personal budgets and care costs, with evidence from SEND pathfinders. It also...
Personal budgets: A Guide for CPC Providers
This briefing document advises children’s palliative care services on the action they need to take...
Personal Budgets: A Guide for Families
This briefing document describes how personal budgets will work for families of children with life-threatening...
Personal Budgets: Introduction
This briefing document provides an introduction to personal budgets and describes how they have worked...
SEND Helping Children Access Education report
This report summarises insight from educationists across the country on what works well, and areas...